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Caring for aging parents from a distance: a
growing problem
Los Angeles Times
By Jonathan Peterson
January 6, 2008
"I had the feeling that all wasn't well with my father," Claire
Milne recalled.
It was Christmastime in 2003, and Milne had flown from her London
home to visit her 82-year-old father in Maryland. Milne noticed
that her dad struggled to stay upright as he walked -- early signs
of a mysterious neurological condition.
Over the next four years, Milne, 56, would travel across the Atlantic
every few months to watch over him, standing by during hospital
stays, offering support as well to her ailing stepmother.
She helped arrange electronic payment of their bills. She helped
them think through the pros and cons of moving into an apartment.
She made sure her siblings were up to date on the latest health
news.
"I don't think of it as a duty," Milne, a telecommunications consultant,
explained shortly before her father died last month. "I think of
it as what I want to do."
Like Milne, millions of adult children now find themselves faced
with the challenge of caring from a distance, a problem that has
a peculiarly modern side. Medical advances keep the elderly alive
longer than ever, and the globalized economy enables their adult
children to pursue careers hundreds or thousands of miles from
home.
Americans over 85 are the fastest-growing segment of the population,
according to the National Institute on Aging. This group -- which
will include increasing numbers of parents of the baby boom --
is expected to swell to 21 million by mid-century from 4.2 million
in 2000.
Yet distant children are often in no position to help. In a further
modern twist, an industry of local care coordinators is emerging
to bridge the gap between far-off relatives and aging parents who
may be overwhelmed by the labyrinth of medical and other services
designed to help the aged and infirm survive in their own homes.
Even now, "we don't have enough geriatric case managers to go
around," said Cheri Lattimer, executive director of the Case Management
Society of America, a group composed largely of healthcare professionals.
As many as 200,000 workers, including nurses, social workers and
family therapists, may be devoting at least some of their efforts
to helping old people and their younger relatives confront a maze
of support services, she said.
A new website is devoted to issues of caring from a distance:
www.cfad.org.
"There will only be an increasing need as the boomers come into
the senior population," Lattimer said.
Care managers often employ nurses, social workers and counselors.
They typically assess a troubled situation, then make referrals
or help arrange needed services, including personal care or professional
guidance.
Such coordinators may continue to monitor a household, serving
as "eyes and ears" for far-flung family members.
"We had four calls from children this week," said Bunni Dybnis,
director of professional services at LivHome Inc., a Los Angeles-based
company that coordinates care for struggling seniors.
Dybnis and others note that it is often during a holiday visit
or other infrequent trips home that an adult child notices an unsettling
change.
Packets of prescriptions lie unopened on the counter. A once-immaculate
house is unkempt. A cool-headed individual is suddenly given to
erratic swings in mood. Sometimes such details might flag a decline,
perhaps the result of Alzheimer's disease or other chronic woes.
"What's it like in the refrigerator?" asked Elinor Ginzler, a
specialist in long-term care at AARP. "Is there food in that refrigerator,
and is it fresh? . . . It's that kind of recognition while you're
visiting that all may not be as well as it was in the past."
For relatives, that may be when life becomes more complicated.
About 7 million family members in the U.S. regularly travel at
least an hour to assist ailing relatives with transportation, errands,
help around the house and other tasks, according to AARP.
For Milne, long-distance caring required a flurry of eight-hour
trips across the Atlantic. The catalyst was seeing her father go
outside to pick up a newspaper. "Whereas previously he would have
just walked out and picked it up, he was extremely cautious and
was worried about falling," Milne recalled.
Ultimately, Milne, two half-brothers and a stepsister played roles
in keeping the older couple independent, though she took the lead
when it came to supporting her father.
"Though I live so far away, I have a kind of natural leadership
role in all this for being the big sister."
In other situations, scattered family members may rely on the
emerging local care coordinator industry to help with arrangements
they can't handle from far away.
"I thought about moving back to Los Angeles, but it's very difficult
when you've made your career somewhere else," said Evelyn Kahan,
61, a teacher who lives near Monterey. Kahan's 86-year-old mother
started having memory problems four years ago.
Instead, Kahan hired a local care manager to help her mother remain
in the home she had occupied for half a century. The manager found
a driver to take the older woman on errands as well as in-home
aides to provide basic assistance in such areas as bathing and "to
make sure she has a couple of decent meals a day."
Kahan described the help as an enormous "stress reliever" for
her and her sister. "Whatever we need, we just call . . . and we
know it will be fine," she said.
Care managers say they can help even highly educated consumers
contend with a plethora of care choices or put together the recipe
of support that will enable the struggling older person to live
in safety and independence.
"Even physicians come to us for resources for their own parents," said
Mary Winners, who founded About Senior Solutions this year in Monrovia.
Winners, whose background is in healthcare business development,
employs licensed clinical social workers and psychotherapists to
evaluate clients' needs.
Among others, she helped a daughter in Arcadia who was trying
to figure out the best way to relocate her 98-year-old father from
a nursing home in North Carolina to an affordable facility near
her. "I try to look at what puzzle pieces are missing for the care
they may need and direct them accordingly," she said.
Dybnis of LivHome has helped out-of-towners contending with a
parent's mental breakdown, siblings fighting over who should provide
help and seniors mistreated by in-home aides.
In one recent case, a man in his 90s broke his hip, which meant
that he could no longer provide care for his wife, who had lost
her vision. In another, a parking attendant informed a visiting
son that the usual caregiver seemed to treat his mother rudely
and abusively.
In yet another, Dybnis said, a woman with chronic mental problems
cut electric wires in her apartment.
"You like to believe your parents are the same as they always
were," said Dybnis, a licensed marriage and family therapist whose
firm has 19 sites in four states. "Everybody is in denial until
something happens."
Care coordinators vary in quality and qualifications, some experts
caution. Costs may exceed the reach of some households and regulation
is lax.
Nonetheless, an attorney who works on elder abuse issues said
the emergence of care management as a specialty was a promising
development and that such coordinators could help steer families
toward safe assistance and away from shady operators who offer
cheap in-home care.
"There aren't enough of them," said Mitchell A. Karasov, an attorney
in Valley Village. The problem, he added, "is that a lot of frail
people find someone to help them at bargain-basement prices with
no credentials. These are the kinds of people who might take advantage
of them."
Within the care industry, meanwhile, a small but growing subgroup
of experts is trying to raise standards. Currently, there are 2,000
members of the National Assn. of Professional Geriatric Care Managers,
which numbered just 50 in the 1980s.
Membership requirements vary, depending on a person's background,
but involve a minimum of two years of supervised experience in
senior care and may require a college degree in counseling, nursing,
mental health or social work.
Cost may be an issue for some families. Private coordinators may
charge $75 to $250 an hour, depending on where a client lives.
In addition, some may charge more for an initial home visit.
"It can be a godsend, but the biggest pitfall is being able to
afford the rate," said Nora Jean Levin, executive director of Caring
From a Distance, a nonprofit Web-based clearinghouse for information
and sources of help for caregivers.
However a household contends with problems that may emerge when
a parent grows old, concerns about long-distance care giving may
become familiar to a growing portion of American families, including
78 million baby boomers.
"If you're not dealing with this now," Ginzler said, "you will
be."

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